We have hope!!!

Well, as is usually the case, things with Alli got worse, before they started to get better. After her weight loss, her pediatrician reassured us that it was likely a result of her learning to walk, which made sense to us because she seemed to be eating well. Unfortunately, right after that, she essentially stopped eating and drinking almost anything. She also decided she is way too independent for bottles ~ she's a big girl now. We were stressing quite a bit over this but figured it was just another bump in the road, until March 6th, when she started sleeping 20 hours/day. When she was awake, she was very alert and playful but did not want to eat and could only last about 1.5 - 2 hours. Once we realized that she was sleeping 20 hours/day, we called the doctor. Fortunately, Alli's pediatric office sees patients on Saturday and Sunday so we went in that Sunday. Because she was so alert while she was awake, the doctor told us she was fine but to check in the next day. Things got worse again, by that Tuesday, she was only taking about 4 oz/day so back to the doctor we went (poor Garrett was in FL for work and caught an early flight home). Alli's pedi prescribed her Zantac, thinking maybe she has silent reflux. The deal was that we would try it for a week but he would move forward with getting her in with a GI specialist at Boston Children's Hospital. Well, he worked very quickly because we had our first appointment with the GI on Thursday!!! She is running a ton of tests and we finally feel like someone is going to get to the bottom of Alli's issues and help her. Prasie God, we finally are getting help! We do not believe there will be a quick fix but at least now, we are working with doctors who acknowledge that there is a problem that we need to solve. The relief and hope we now feel is amazing. God really does answer prayers! We go back to Children's this Friday to meet with their nutritionists because our GI doc agrees that our past nutrition appointments were not helpful ~ she agreed with us that we don't need to hear that we are doing everything right, we need to analyze the data and formulate a plan ~ FINALLY! Alli will also have her Cystic Fibrosis test on Friday, fortunately, that shouldn't require any needles (poor Alli got my small veins so the blood draw last week was not pleasant!) We go back to the GI doc on April 10th. We will keep you posted on Alli. Please continue to pray for her.